My disability
My diagnosis
My scoliosis
Using a wheelchair
My diabetes
The other stuff
As FA progresses

Ataxia UK Coventry and Warwickshire Support Group

Independent Living
Getting the care I need
Using a hoist

My powerchair

Using public transport

The Open University
Online courses

Working life

My travelsTravels in the UK
Walt Disney World

Things that help
Foot surgeryUsing a catheter
My exercise bike
Taking CoQ10 and vitamin ESwimmingMassageBotox

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Last updated: February 2017

Things that help: having botox injections

I had botox injections to control the muscle spasm in my feet for three years. Unfortunately my muscles became immune to it and stopped having Botox in August 2013. However I had such great results from it that I'd recommend it to others - if I'd of known it was out there I would have started having it many years before...

As you can see by looking at the before and after shots below, the difference was amazing. Before botox my feet were in constant spasm which was very uncomfortable and I used to suffer really badly with broken skin/pressure sores from where my feet used to rub on my shoes. In October 2010 I had my first set of botox injections into muscles in my calves to relax the muscles that were overpowing the weaker ones, thus causing spasm. The actual injections had to be done every 3-6 months and splints needed to be worn for a few hours every day to stretch my feet and maintain a natural position. Being able to stand in my powerchair, which I do daily, is also a really great way to stretch and therefore mantain the benefits of botox.

Botox: before and after

I now haven't had Botox for about a year and although some spasm has returned it's still not as bad as it was before botox. I do put a lot of effort into stretching and relaxing my calves/ankles/feet by:

This website has been around sinse 1998, and although it's changed a lot over the years it's always been about me and my disability. Over the years I have used many different hosts and website design packages. For the past ten years or so I have used 1&1 as my host and I have always been very happy with it. I have always wanted to learn how to build a website from scratch using Adobe Dreamweaver, so about three years ago I got in touch with Polar Solutions and arranged for a trainer to come out to my home to teach me at my own pace. So I now design this website using Adobe Dreamweaver and the skills I learned on that course.