My disability
My diagnosis
My scoliosis
Using a wheelchair
My diabetes
The other stuff
As FA progresses

Ataxia UK Coventry and Warwickshire Support Group

Independent Living
Getting the care I need
Using a hoist

My powerchair

Using public transport

The Open University
Online courses

Working life

My travelsTravels in the UK
Walt Disney World

Things that help
Foot surgeryUsing a catheter
My exercise bike
Taking CoQ10 and vitamin ESwimmingMassageBotox

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Last updated: February 2017

Taking CoQ10 and vitamin E

I take a suppliment called CoQ10 and vitamin E. I started taking these whilst doing a drugs trial many years ago. Straight away I noticed an improvement in m speech, swallowing and tiredness. I have carried on taking CoQ10 (600mg every day) and vitamin E (2,000 IU) and I buy both of these from the US they would be too expensive in the UK.

There have been times when I've stopped taking CoQ10 because I've forgotten or couldn't afford to buy a new batch. Every time a worsening in my speech, swallowing and fatigue follows. I get a real sense that CoQ10 and vitamin E are keeping these very signficant symptoms at bay. It's also supposed to be excellent for the heart and I can't help but wonder if my healthy heart has something to do with taking it.

My CoQ10

Because I am extremely clumsy my mum or dad used to help me to handle these tablets when I lived at home - otherwise they'd end up everywhere but in my mouth. When I started living independently I had to figure out a way of taking these myself which had a minimum risk of me throwing them on the floor. I now put all of my tablets in a large pil box which has a seperate compartment for every day of the week. Every day I open one compartment and tip the contents directly into my mouth - I don't actually handle them at all. Every week my PA fills the pill box up ready for the next.

This website has been around sinse 1998, and although it's changed a lot over the years it's always been about me and my disability. Over the years I have used many different hosts and website design packages. For the past ten years or so I have used 1&1 as my host and I have always been very happy with it. I have always wanted to learn how to build a website from scratch using Adobe Dreamweaver, so about three years ago I got in touch with Polar Solutions and arranged for a trainer to come out to my home to teach me at my own pace. So I now design this website using Adobe Dreamweaver and the skills I learned on that course.