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FA & I: Celebrating 25 years together
 
My diagnosis
My scoliosis
Muscle Spasm
Using a wheelchair
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NHS Wheelchair Services
Foot surgery
Using a catheter
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As FA progresses
Living with depression
 
Ataxia UK Coventry and Warwickshire Support Group
 
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Using a hoist
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Last updated: October 2018
My disabilty: What will happen as FA progresses?
This is a really difficult question to answer. Everyone with FA is different - different age of onsets, different rates of progression and very different symtoms. If you or someone you know has FA, their symptoms may be very different to mine. A person's attitude and temprement also inflences how it progresses. So all I can be is vague...

I've met hundreds of people who have FA over the years. Lots in their 40s, some in their 50s and a couple in their 60s. I've known quite a few people in their 20s die from cardiomyopathy. Some people I've met have lost their sight/hearing/speech to FA, lots haven't. Some people are dependent on walkers, wheelchairs or powerchairs and they become dependent on these things at different ages. Eveyone who has FA will eventually lose their ability to walk. Some have enough coordination in their hands to use iPads and iPhones whereas some haven't. I've met some who drive while others like me are unable to. Some marry and have kids whilst some don't. Some live alone and others travel the world whilst others are unable to. FA is just one big game of who knows?

 
This website has been around sinse 1998, and although it's changed a lot over the years it's always been about me and my disability. Over the years I have used many different hosts and website design packages. For the past ten years or so I have used 1&1 as my host and I have always been very happy with it. I have always wanted to learn how to build a website from scratch using Adobe Dreamweaver, so about three years ago I got in touch with Polar Solutions and arranged for a trainer to come out to my home to teach me at my own pace. So I now design this website using Adobe Dreamweaver and the skills I learned on that course.